A fifteen-year-old girl who suffers from a rare genetic disorder, along with severe epilepsy, was recently denied CBD oil treatment by her doctors in Kansas City.
Chloe Means’ disorders are so severe that the teenager is required to have a special kind of flooring in her bedroom and wear a padded helmet in order to remain safe because her seizures could trigger without warning, at any moment.
Although Missouri has a new law allowing for the use of CBD oils in the case of severe epileptic patients, Kansas City hospitals are not permitting their doctors to prescribe their use at this time. To parents of epileptic children like Chloe, this disregard to state law is crushing the hope of families seeking alternative therapies when medications fail.
According to hospital officials, their reluctance to prescribe CBD oils exist because the oils have not been FDA approved—a point which both parties (the FDA and doctors) say they’re working to amend.
Kansas City’s Children’s Mercy Hospital has said they are working to begin a study testing CBD oil’s effectiveness for epileptic patients; however, they further stated that they don’t expect a wide number of recommendations.
In order to help their Chloe, the Means are now seeking help from St. Louis’ Comprehensive Epilepsy Care Center.
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